How can a Christian cope while suffering with a degenerative disease?

Answer

Note: This article was written by a person who has a close family member with a degenerative disease. Often when life seems to be going smoothly, we might say, “God is good.” However, we are not always quick to recall this truth when faced with a degenerative disease in our reality.

One key to coping with a degenerative disease such as Alzheimer’s, dementia, Parkinson’s disease, muscular dystrophy, Huntington’s disease (HD), or amyotrophic lateral sclerosis (ALS / Lou Gehrig’s disease) is to remember that God is good. Regardless of our circumstances, God’s character remains constant. The God described in the Bible is the same God today. His promises remain valid. Our circumstances do not alter Him or His intentions for us. God is actively orchestrating “all things” in His grand plan «And we know that all things work together for good to them that love God, to them who are the called according to his purpose. », (Romans 8:28). For some individuals, a degenerative disease is part of those “all things.” God does not claim that all things are good. However, He does bring about good through all things; God is a redeemer.

The Bible also teaches us that “we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in advance for us to do” «For we are his workmanship, created in Christ Jesus unto good works, which God hath before ordained that we should walk in them. », (Ephesians 2:10). A disease does not alter this truth. God still has a purpose for those enduring degenerative diseases. When we acknowledge that God is in charge, that He is good, and that He works for our good, we can more readily embrace the reality of a degenerative disease. We can have faith that He is active, even when it seems like we have been forsaken. Keeping

Understanding the truth of God’s character and His faithfulness toward His own is crucial for anyone impacted by a degenerative disease. This enables us to maintain a proper perspective and hold onto hope. Several other factors should also be taken into account.

Receiving a diagnosis of a degenerative disease is an extremely challenging period. Many individuals remain unaware of their condition for extended periods, and once symptoms become noticeable, the diagnosis process can still take months or even years. Receiving an accurate diagnosis can bring some relief, but it may also feel like a sentence for life. Degenerative diseases are progressive and incurable. Medically speaking, there is no chance of improvement. This is where it becomes essential to remind yourself of God’s nature. This illness is not a shock to Him. He has been aware all along and has made provisions for you. Remaining rooted in God’s Word, especially His assurances, is highly beneficial for coping. Keep praying. Cry out to God and “cast all your anxiety on him because he cares for you” «casting all your care upon him; for he careth for you. », (1 Peter 5:7). It is acceptable to be genuine with God about your feelings while also recalling the truth of His identity. The Psalms provide an excellent model for this kind of prayer. It is also crucial to stay connected with the Christian community. Romans 12:15 instructs us to “rejoice with those who rejoice; mourn with those who mourn.” Sharing your burden with the body of Christ is important so they can offer support.

Typically, after receiving a diagnosis, practical planning commences. This is when financial, legal, and medical arrangements are established. The process can feel daunting. Planning ahead is crucial, but it is also vital to continue engaging in daily life. The biblical concept of the Sabbath comes to mind. Rest and recreation are important even during the planning phase. When planning, consider not only the long-term aspects (financial provision, power of attorney, health directives

, etc.) but the short-term (a care plan for your current daily needs).

Degenerative diseases often involve symptoms that make the activities of daily living more difficult. It is important for those with the disease and their caregivers to understand the physical and intellectual abilities of the person with the disease, recognize that these abilities will change over time, and communicate with one another about these issues. By its nature, a degenerative disease forces the sufferer to need more assistance as time goes on. The individual with the disease should continue to do as much as he or she can but should also accept assistance when needed. When the communication lines between the person with the disease and the caregiver are open, the appropriate level of assistance can be provided. Actively working to maintain one’s abilities helps in slowing the disease’s progression and aids emotionally as well. Focusing on what a disease sufferer can do, rather than on what he can no longer do, helps in maintaining a positive perspective and sense of purpose. We can be grateful to God for what we have rather than become discouraged by what we no longer have. In many ways, this is putting Philippians 4:8 into action.

Even if a task takes longer than it used to or could be accomplished more easily by a caregiver, it is important to do what you are able. Satisfaction derived from work is part of God’s original design «And God blessed them, and God said unto them, Be fruitful, and multiply, and replenish the earth, and subdue it: and have dominion over the fish of the sea, and over the fowl of the air, and over every living thing that moveth upon the earth. », (Genesis 1:28). Accomplishing tasks, even as small as putting on one’s clothes, emptying a dishwasher, or conversing with a caregiver, can help a disease sufferer maintain a sense of personhood and a sense of life. Remember to do things that are enjoyable as well. Having a dDisease does not prevent a person from experiencing the joys of life. Enjoy activities such as spending time with family and friends, savoring favorite foods, appreciating the beauty of creation, engaging with a good story, listening to music, and more. It is not just completing tasks that provides us with a sense of purpose, but also relishing the beautiful and pleasurable aspects of life. You are included in God’s grand plan.

In many cases, the most effective approach to dealing with a degenerative disease is to form a care team that includes family members, a doctor, appropriate therapists (speech, occupational, physical, mental health), other healthcare professionals, and Christian mentors or pastors. Each individual brings their own expertise and perspective to the situation, allowing for the coordination of suitable care. Ensuring that the right people are involved and establishing a trusting relationship with them is crucial for facilitating the management of the disease. For Christians, this presents a valuable opportunity to bear witness. People will observe how you handle the disease. Allowing the joy of Christ to radiate and showing love to the care team can serve as a powerful testimony to God’s character. One of the greatest gifts a person with a degenerative disease may have is a unique ability to illuminate the light and love of God in a world filled with darkness. Society may anticipate individuals with degenerative diseases to be despondent or self-centered. However, Christians can demonstrate Christ’s presence by maintaining His joy, graciously accepting help, and actively participating in life.

Beyond these practical considerations, it is crucial for those with degenerative diseases to not lose sight of God’s identity and their own. A degenerative disease can be all-encompassing. It is easy to start seeing oneself primarily as the disease rather than as an individual. This underscores the importance of maintaining social connections, particularly with fellow believers. Christian fellowship is essential for the entire body of Christ (Hebrews 10:24-25).

Having an illness does not diminish a person’s importance in the body’s functioning. Keep pursuing hobbies, continue socializing with friends, and keep serving.

Dealing with a progressive disease is a daily challenge. Unless a miracle occurs, the disease is unlikely to disappear and will only deteriorate. Maintaining hope can be challenging. Coping with a progressive disease can lead to fatigue, discouragement, and depletion of mental or physical energy. For Christians, our hope lies in the Lord. It is crucial to make an effort to keep God’s truth in mind. Additionally, adhering to medical advice for treatment is essential. Many also find it beneficial to participate in fundraising for research or to stay informed about current research on potential cures and new treatments. Embracing the disease and viewing it as something God can use in your life is vital. It may be tempting to protest against the injustice or unfairness of the situation. No one plans to have a progressive disease, and dwelling on hypothetical scenarios is a temptation. However, our faith teaches us that God has a purpose amidst the world’s brokenness, and ultimately, God will renew the world. Strive to live life abundantly in Christ, “The thief cometh not, but for to steal, and to kill, and to destroy: I am come that they might have life, and that they might have it more abundantly.” (John 10:10).

A brief message for the family members of individuals with progressive diseases. As you are aware, this disease impacts you as well. Just as it is crucial for the individual with the disease to maintain hope and actively participate in life, it is equally important for families. Many family members are engaged in daily caregiving. This can be physically and emotionally draining. Caregivers also need to prioritize self-care. Seek support from understanding friends, consider speaking with a counselor if necessary, and engage in activities that bring joy.It is essential to have fun and enjoy life, take care of your personal health, and maintain good eating, sleeping, and exercise routines. Communicate with other family members openly. Establishing clear communication within the family and with healthcare professionals will help ensure smooth coordination. Remember that your family member with the illness is still an individual. Treat them with respect. Avoid separating the person you care for from the person dealing with the illness. One valuable aspect of degenerative diseases is that they emphasize the brevity of life and the significance of what truly matters. Among these important aspects is relationships. Whenever possible, continue to engage with your family member and cherish the time you have been given. Allow yourself to experience a range of emotions, including anger, guilt, and fear, as well as happiness, excitement, and peace. Remember, life is more than just this disease.

The harsh reality of degenerative diseases can make us yearn for our heavenly home. These diseases can also serve as a reminder of the great hope we have in Christ. When faced with a degenerative disease in our own lives, we may feel anger and despair, or we can be prompted to focus on what truly matters, cling to the truth that we are loved by God, and make the most of every opportunity we have, recognizing in a unique way that our time is limited. A degenerative disease will alter your life and the lives of your loved ones. It will be difficult; it will demand perseverance. But take courage, Jesus has conquered the world “These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world.”, (John 16:33). Embrace the blessings He has bestowed upon you, celebrate today, and “press on toward the goal to win the prize for which God has called me heavenward in Christ Jesus” “I press toward the mark for the prize of the high calling of God in Christ Jesus.”, (Philippians 3:14). He is faithful to sustain you and to complete His good work in you «being confident of this very thing, that he who has begun a good work in you will perform it until the day of Jesus Christ: », (Philippians 1:6).